One of the loveliest parts of my work is being able to help people by sharing our experiences as a family, augmented by what I have learnt from my campaigning and consultancy in the 8+ years since my dad died.…
Tag: personal experience
Demanding better for people with dementia
Ordinarily, September is dominated for me by World Alzheimer’s Month (or World Dementia Month as I prefer to call it), which in practice means 30 days of sharing all of the great content, ideas and initiatives that lots of fantastic…
Family carers and the coronavirus pandemic
For the last three months I’ve written about different aspects of the coronavirus pandemic. For June, I want to think about how family carers have been affected by lockdown and the ongoing coronavirus crisis. The pandemic has raised so many…
Resolve to ask people with dementia what THEY want
With over 200 blogs on D4Dementia, some of them now 7 years old, I’ve decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they remain relevant, and…
Myths and lessons
With over 200 blogs on D4Dementia, some of them now 7 years old, I’ve decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they remain relevant, and…
It could be you
With over 200 blogs on D4Dementia, some of them now 7 years old, I’ve decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they remain relevant, and…
Experiences of loss
With over 200 blogs on D4Dementia now, some of them approaching 7 years old next month, I’ve decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they…
What to do for ‘the best’
Last year I wrote a popular blog post entitled ‘Five things I wish I’d known before my dad’s dementia’. Point two was entitled ‘What to do for the best’ and said: “The great problem when my dad was living with…
A celebration of what is possible
As another September brings World Alzheimer’s Month, there is always the temptation to write a blog that points out how much we still need to do to improve awareness, care and support for people who are living with dementia and…
Kathy’s story – Living with a learning disability and dementia
Imagine reaching your 40’s or 50’s having lived your whole life in the shadows of discrimination, exclusion, social stigma and poor treatment within many health and social care services… and then developing dementia. You’re younger than the majority of people…
The forgotten workforce
In all of the meetings I’ve attended about unpaid carers in the 6+ years since my own caring role for my dad ended, the most common themes have been: A) How do we identify carers? And B) How do we…
The rainbow of dementia
This week will mark what would have been my dad’s 91st birthday, and later on in April, the 6th anniversary of his passing. These milestones have left me reflecting on the last 19 years of dad’s life, how dementia crept…
Remember me
My dad’s legacy Since 2012, this slide is how I have finished many a presentation at a conference or event. It’s a simple philosophy, but a highly effective one at helping audiences remain grounded in the most vital aspect of…
