It’s been a lovely whirlwind of (very kind) congratulatory messages following the announcement of my MBE in the King’s Birthday Honours list 2025. Knowing about my honour a few weeks before the announcement made it a very hard secret to…
Tag: personal experience
Learning from personal diagnosis stories
Over the 20+ years since my dad was diagnosed with dementia, I’ve often thought about what his diagnosis experience was like from his perspective. We never talked about it, and of course now we’ll never be able to. Our understanding…
Knowledge is power
One of the loveliest parts of my work is being able to help people by sharing our experiences as a family, augmented by what I have learnt from my campaigning and consultancy in the 8+ years since my dad died.…
Demanding better for people with dementia
Ordinarily, September is dominated for me by World Alzheimer’s Month (or World Dementia Month as I prefer to call it), which in practice means 30 days of sharing all of the great content, ideas and initiatives that lots of fantastic…
Family carers and the coronavirus pandemic
For the last three months I’ve written about different aspects of the coronavirus pandemic. For June, I want to think about how family carers have been affected by lockdown and the ongoing coronavirus crisis. The pandemic has raised so many…
